Connect with us

Editorial

 Make sickle cell treatment affordable and accessible

Published

on

 People with sickle cell disease (SCD), an inherited blood disorder, endure unhappy lives due to its numerous problems, yet, they can manage their illness and lead happy lives if they receive regular medical care and have access to medications.

Unfortunately, advanced treat­ments for SCD are very expensive, and therapies that can cure the disease are still out of reach.

Sickle cell disease is a danger­ous genetic condition as red blood cells with the shape of a sickle block blood flow, causing severe pain, organ damage, life-threat­ening illnesses, and possibly early death.

The disease causes severe com­plications including chronic pain, anaemia, infections, acute chest syndrome, strokes and organ dam­age, often leading to shortened life expectancy.

Advertisement

Globally, around 1,000 babies are born with the condition daily, with three-quarters in sub-Saharan Africa. In Ghana SCD, affects about three in every 100 newborns.

It was against this backdrop that health experts have urged Ghana to prioritise affordable and accessible treatment for sickle cell disease (SCD) to enable patients benefit from gene therapy which has been developed in recent years, as a potential cure.

According to Dr. Lawrence Osei-Tutu, a Sickle Cell and Child­hood Cancer Expert at the Komfo Anokye Teaching Hospital, “the country must focus on practical, lower-cost interventions such as hydroxyurea, a decade-old can­cer drug proven to reduce pain­ful episodes, hospitalisation and life-threatening complications in SCD patients.”

He said that the medicine, that is swallowed, makes red blood cells work better and is thought to be safe and successful.

Advertisement

“Hydroxyurea therapy is as good as the cure and a low-hang­ing fruit to pluck, we must bring a cure to our sickle cell warriors, but do so sustainably,” he urged.

The expert noted that despite its benefits, “hydroxyurea is not widely accessible in Ghana” stress­ing that, “many patients either cannot afford it or struggle with irregular supply through the health system.”

The Spectator supports the expert’s argument that expand­ing access will offer short-term respite as the nation develops the necessary infrastructure, educates experts, and obtains the funds to support curative treatments in the future.

With an estimated 15,000 ba­bies born with sickle cell disease each year in Ghana, Dr. Osei Tutu issued a warning, pointing out that “failure to improve access to ef­fective treatment will leave many patients vulnerable to preventable complications and early death.”

Advertisement

In light of this, the Spectator suggests that people obtain genet­ic testing in order to determine their carrier status.

A genetic counsellor can also explain the inheritance concerns and go over ways to keep their children from inheriting the illness if both partners are carriers.

To prevent passing on sickle cell disease, couples who are at risk of having a child with the con­dition can decide to adopt a child or live child-free.

Churches should require that prospective partners know their current status in order to decide whether or not to continue their relationship.

Advertisement


Join our WhatsApp Channel now!
https://whatsapp.com/channel/0029VbBElzjInlqHhl1aTU27

Continue Reading
Advertisement

Editorial

Road safety must begin with us the users

Published

on

Road Safety begins with you

Dear Editor,

Before we start blaming the government, the authorities and how bad our roads are, perhaps we should first ask ourselves what role we played in making our roads unsafe.

Road safety is often discussed as though it is solely the responsibility of the government and law enforcement agencies, neglecting our roles we play to make the roads unsafe.

While authorities have an important role to play, the behaviour of individual road users remains equally important.

Advertisement

A driver who speed, overtakes recklessly, uses phone while driving or drives when tired is making a decision that could affect many lives.

A motorcyclist who ignored traffic light and also refuse to wear a helmet, passengers who encourage the driver to speed and the pedestrians who crosses a busy road carelessly can also contribute to danger.

We must therefore develop a strong culture of personal responsibilities on our roads.

Drivers should obey speed limit, avoid distractions and ensure their vehicles are road worthy, passengers should also not encourage reckless driving simply because they want to arrive at their destination quickly whiles pedestrians must also exercise greater caution when crossing roads.

Advertisement

 At the same time authorities must continue to improve road infrastructures, enforce traffic regulations consistently and educate the public about responsible road use.

Road safety cannot succeed through enforcement alone; it requires change in attitude. If each road user understand that another person’s life may depend on their decision, our road can become safer.

Let us not wait for another crash before we remember the value of life. Thank you for the space.

From Akwasi Aaron

Advertisement

Accra.   

Continue Reading

Editorial

Free SHS does not mean free parenting

Published

on

Dear Editor,

I was concerned by a point raised during a radio review about the growing expectation among some parents that once their children attend government schools, particularly under the Free SHS programme, the government must provide virtually everything they need.

This mindset deserves serious public discussion.

The introduction of Free SHS has undoubtedly lifted a significant financial burden from parents. Government is already absorbing substantial costs associated with the education of thousands of Ghanaian children. Students in public second-cycle institutions also benefit from provisions such as tuition support, meals and other essential services.

Advertisement

However, Free SHS should not be interpreted as free parenting. A parent should not expect the government to provide every personal item a child needs simply because the child attends a public school. Items such as mattresses, sponges, toiletries, clothing, chop boxes and other personal necessities should, where possible, remain part of the parent’s responsibility.

The same principle applies at the basic-school level. Government has a responsibility to provide quality education and create an enabling environment for children to learn. Parents, however, have an equally important responsibility to support their children’s education and welfare.

Government cannot and should not replace the family. When parents gradually transfer every responsibility to the state, we risk creating a culture of dependency in which citizens expect government to solve every personal problem. That is neither sustainable nor healthy for our development as a nation.

We must therefore appreciate the support government provides while recognising that education is a shared responsibility. Parents must continue to contribute according to their means, schools must do their part, and government must continue providing the necessary educational infrastructure and support. Rather than asking, “What else will government give us?” parents should also ask, “What can I do to support my child’s education?”

Advertisement

Free education is a public investment, not an invitation for parents to abandon their responsibilities. Ghanaians must therefore change the mentality that government must provide everything. The state can carry a significant portion of the burden, but the family must never surrender its responsibility.

Free SHS should make education more accessible not make parenting optional.

From Desmond Aidoo

Sowutuom

Advertisement

Continue Reading
Advertisement

Trending