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Editorial

 Make sickle cell treatment affordable and accessible

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 People with sickle cell disease (SCD), an inherited blood disorder, endure unhappy lives due to its numerous problems, yet, they can manage their illness and lead happy lives if they receive regular medical care and have access to medications.

Unfortunately, advanced treat­ments for SCD are very expensive, and therapies that can cure the disease are still out of reach.

Sickle cell disease is a danger­ous genetic condition as red blood cells with the shape of a sickle block blood flow, causing severe pain, organ damage, life-threat­ening illnesses, and possibly early death.

The disease causes severe com­plications including chronic pain, anaemia, infections, acute chest syndrome, strokes and organ dam­age, often leading to shortened life expectancy.

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Globally, around 1,000 babies are born with the condition daily, with three-quarters in sub-Saharan Africa. In Ghana SCD, affects about three in every 100 newborns.

It was against this backdrop that health experts have urged Ghana to prioritise affordable and accessible treatment for sickle cell disease (SCD) to enable patients benefit from gene therapy which has been developed in recent years, as a potential cure.

According to Dr. Lawrence Osei-Tutu, a Sickle Cell and Child­hood Cancer Expert at the Komfo Anokye Teaching Hospital, “the country must focus on practical, lower-cost interventions such as hydroxyurea, a decade-old can­cer drug proven to reduce pain­ful episodes, hospitalisation and life-threatening complications in SCD patients.”

He said that the medicine, that is swallowed, makes red blood cells work better and is thought to be safe and successful.

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“Hydroxyurea therapy is as good as the cure and a low-hang­ing fruit to pluck, we must bring a cure to our sickle cell warriors, but do so sustainably,” he urged.

The expert noted that despite its benefits, “hydroxyurea is not widely accessible in Ghana” stress­ing that, “many patients either cannot afford it or struggle with irregular supply through the health system.”

The Spectator supports the expert’s argument that expand­ing access will offer short-term respite as the nation develops the necessary infrastructure, educates experts, and obtains the funds to support curative treatments in the future.

With an estimated 15,000 ba­bies born with sickle cell disease each year in Ghana, Dr. Osei Tutu issued a warning, pointing out that “failure to improve access to ef­fective treatment will leave many patients vulnerable to preventable complications and early death.”

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In light of this, the Spectator suggests that people obtain genet­ic testing in order to determine their carrier status.

A genetic counsellor can also explain the inheritance concerns and go over ways to keep their children from inheriting the illness if both partners are carriers.

To prevent passing on sickle cell disease, couples who are at risk of having a child with the con­dition can decide to adopt a child or live child-free.

Churches should require that prospective partners know their current status in order to decide whether or not to continue their relationship.

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Editorial

The law must deal with sexually abusive fathers

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Dear Editor,

I am deeply concerned about the increasing reports of fathers sexually abusing their own daughters.

This disturbing trend is not only destroying families but also leaving victims with lifelong emotional, psychological and physical trauma.

Parents are expected to protect and nurture their children, not become a source of fear and abuse. Such acts are unacceptable and must be condemned by every section of society.

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I urge law enforcement agencies to investigate these cases promptly and ensure perpetrators face the full rigours of the law.

At the same time, government, religious bodies, schools and civil society organisations must intensify public education on child protection and encourage victims and witnesses to report abuse without fear.

Communities must also stop shielding offenders because of family ties or social status. Every child deserves to grow up in a safe and loving environment.

I hope this issue receives the urgent national attention it deserves.

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From Eugene Ampiaw

Accra

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Editorial

Teach children basic swimming, water safety techniques

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The United Nations Children’s Fund (UNICEF) reports that drowning is still one of the top 10 causes of death worldwide for those between the ages of one and 24, with children under five being most at risk.

Drowning is defined as being underwater and not being able to breathe, which can result in death or injury.

Additionally, UNICEF has warned that children playing in or near water without adequate supervision and safety precautions can quickly transform a happy moment into a tragedy.

It is worrying that children and young adults make up the majority of the estimated 1,100 drowning deaths that occur in Ghana alone each year, or almost three deaths per day.

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These were contained in a statement commemorating World Drowning Prevention Day, which is observed on July 25 every year to strengthen national and international efforts to prevent drowning.

According to the World Health Organisation (WHO), drowning is a preventable global public health emergency that kills around 300,000 people a year, or 30 people every hour on average.

In addition to the numbers, many more cases in isolated areas go unreported, underscoring the problem as a serious yet underappreciated threat to public health.

Drowning can result in death, long-term health problems, or disability, hence it is important to raise awareness of this issue by educating the public on how to save lives.

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Although flooding is a common cause of drowning, swimming pools, natural bodies of water like lakes and rivers, and residential water storage facilities are the most common locations. As a result, preventing drowning necessitates ongoing supervision, physical barriers, and critical water safety education.

Additionally, training in basic water rescue techniques and cardiopulmonary resuscitation (CPR), an emergency lifesaving operation carried out when the heart stops beating, is crucial.

It is important for parents and community people to learn how to react to an emergency without endangering themselves.

There is the need to install a fence around any body of water near your house, such as a pond or pool, to keep children from walking in unattended. Keep an eye on your children and avoid becoming sidetracked by your phone or talking to someone else.

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The Spectator agrees with the WHO’s recommendation to cover more water sources, including cisterns, wells, and water containers, in order to avoid an accidental fall. When not in use, keep bathroom and laundry room doors locked and empty buckets, containers, and portable pools.

Teaching school-age children over six years old the fundamentals of swimming and water safety is one of the best approaches to prevent drowning.

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