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Editorial

 Make sickle cell treatment affordable and accessible

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 People with sickle cell disease (SCD), an inherited blood disorder, endure unhappy lives due to its numerous problems, yet, they can manage their illness and lead happy lives if they receive regular medical care and have access to medications.

Unfortunately, advanced treat­ments for SCD are very expensive, and therapies that can cure the disease are still out of reach.

Sickle cell disease is a danger­ous genetic condition as red blood cells with the shape of a sickle block blood flow, causing severe pain, organ damage, life-threat­ening illnesses, and possibly early death.

The disease causes severe com­plications including chronic pain, anaemia, infections, acute chest syndrome, strokes and organ dam­age, often leading to shortened life expectancy.

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Globally, around 1,000 babies are born with the condition daily, with three-quarters in sub-Saharan Africa. In Ghana SCD, affects about three in every 100 newborns.

It was against this backdrop that health experts have urged Ghana to prioritise affordable and accessible treatment for sickle cell disease (SCD) to enable patients benefit from gene therapy which has been developed in recent years, as a potential cure.

According to Dr. Lawrence Osei-Tutu, a Sickle Cell and Child­hood Cancer Expert at the Komfo Anokye Teaching Hospital, “the country must focus on practical, lower-cost interventions such as hydroxyurea, a decade-old can­cer drug proven to reduce pain­ful episodes, hospitalisation and life-threatening complications in SCD patients.”

He said that the medicine, that is swallowed, makes red blood cells work better and is thought to be safe and successful.

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“Hydroxyurea therapy is as good as the cure and a low-hang­ing fruit to pluck, we must bring a cure to our sickle cell warriors, but do so sustainably,” he urged.

The expert noted that despite its benefits, “hydroxyurea is not widely accessible in Ghana” stress­ing that, “many patients either cannot afford it or struggle with irregular supply through the health system.”

The Spectator supports the expert’s argument that expand­ing access will offer short-term respite as the nation develops the necessary infrastructure, educates experts, and obtains the funds to support curative treatments in the future.

With an estimated 15,000 ba­bies born with sickle cell disease each year in Ghana, Dr. Osei Tutu issued a warning, pointing out that “failure to improve access to ef­fective treatment will leave many patients vulnerable to preventable complications and early death.”

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In light of this, the Spectator suggests that people obtain genet­ic testing in order to determine their carrier status.

A genetic counsellor can also explain the inheritance concerns and go over ways to keep their children from inheriting the illness if both partners are carriers.

To prevent passing on sickle cell disease, couples who are at risk of having a child with the con­dition can decide to adopt a child or live child-free.

Churches should require that prospective partners know their current status in order to decide whether or not to continue their relationship.

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Editorial

Let’s be careful as there are floods everywhere

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The recent floods in Accra and the neighbouring areas, which were brought on by a heavy downpour, were very catastrophic and caused loss of lives and property damage.

Similar severe flooding and downpours were also reported in other regions, which has caused anxiety and dread whenever it rains. 

In a short period of time, the floods had a dangerous effect on entire communities and landscapes. Because of this, a lot of people are now temporarily putting up with friends or family members.

Videos that went viral on social media showed cars and other valuables being swept away by the floodwaters with little to nothing being done to stop them.

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Certain organisations, including the New Times Corporation (NTC), publishers of The Ghanaian Times and The Spectator, were not spared because the flood level damaged important documents and swamped their premises.

Even locations outside of flood-prone zones were inundated by the floods.

The rains would intensify along with thunderstorms, according to the Ghana Meteorological Agency (GMet), which is tasked with observing, analysing, and disseminating weather and climate information to protect lives, promote economic planning, and maintain public safety.

It is important to remember that increased evaporation and atmospheric moisture due to climate change might intensify rainfall. Furthermore, more catastrophic floods are caused by heavy rainfall and shifting topography.

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We discussed the causes of floods and mitigation strategies in our earlier editorial, “Accra floods necessitate change in attitude.”

Although the current flood situation is dire, safety can be greatly improved by being ready and understanding what to do.

The Spectator encourages the public to make an effort to be well-informed about weather predictions and take the required precautions to stay safe because the GMet is now providing accurate forecasts.

Make excellent use of the alert services that you can sign up for these days to get notifications on your phone.

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Water, non-perishable food, a flashlight, batteries, prescription drugs, crucial documents in waterproof containers, and first aid supplies should all be prepared and kept readily available.

Safeguard your house and offices, relocate valuables to higher floors, and raise electrical appliances off the ground.

Avoid coming into contact with floodwater whenever you can since it might be tainted with chemicals, sewage, and other dangerous substances and also reptiles.

To make sure your neighbours are secure, it is crucial to check on them, especially if they are elderly, disabled, or living alone.

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Additionally, parents need to make sure their children do not play in or close to floodwaters.

Let us be careful as there are floods everywhere.

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Editorial

Let’s see police manage traffic in flood areas

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Dear Editor,

I wish to plead with the Motor Traffic and Transport Department (MTTD) to dispatch personnel to some of the flash points when it rains.

What happened last Monday and Tuesday at major transport terminals must not be something that must be repeated.

I wish to first of all commend the Interior Minister, Mr Muntaka Mubarak for the swift intervention by announcing the ‘holiday’ that gave workers and school children a relief.

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It was such a tough moment for workers driving and those not driving. The situation at the Kwame Nkrumah Circle Interchange and other transport terminals forced workers to walk long distances.

Apart from the lack of public transport, pedestrians had to navigate through mud, making it difficult to move around.

I believe that with the presence of police personnel, the traffic situation can be well managed to ease the huge traffic congestion to make travelling a lot easier.

Frank Amoah,

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Kasoa

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