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Cerebral Palsy not contagious – concerned parent
A 35-year-old mother of a cerebral palsy child has debunked the claims that people who help in taking care of children with such condition risked giving birth to same because such children are cursed either by the gods or evil spirits.
She says that cerebral palsy childfen are often referred to as “nsuo ba” or “water children” literally meaning their mothers went to a water deity for them.
“In my case I was blamed for not keeping myself away from evil spirits when I was pregnant” the worried mother said this on condition of anonymity in an interview with The Spectator on Wednesday.
She has a six-year-old daughter with cerebral palsy.
Cerebral palsy is a congenital disorder of movement, muscle tone or posture and is usually due to abnormal brain development often before birth but could also occur at birth or in early infancy. Meanwhile the cause, according to health personnel, is not known.
She said she was fortunate to have in-laws who understood the situation and helped her and the daughter.
“However, in her early years it was tough for me to find a person willing to take good care of her so I found myself stuck at home on many occasions and this affected my mental health, ” she disclosed.
The woman said such children took various medications, (needed therapy or even sometimes surgeries) to control seizures and other factors which were expensive, therefore, placing financial burden on parents and guardians of such children.
She said there was the need for the government to put some, if not all, of such medications on the National Health Insurance Scheme (NHIS) to cushion parents.
She again said taking care of such children was emotionally draining and it was sad to note that society was not doing much to help parents and guardians of such unfortunate children by accepting them and offering the necessary support to ease their burden.
“There must even be centres where parents and guardians of such children could go for counselling to help their mental health” she said stressing that finding appropriate caregivers was also a major challenge.
On education, she expressed concern that children with cerebral palsy did not get basic education because majority of schools, (both public and private), did not accept them into their fold.
“Schools are not willing to put in the necessary structures which ensure that such children get education and therapy that meet their need or tailored to them.
“Even inclusive education as things stand now, only seems to be on paper but not actually practised. Government should show commitment by initiating measures to actualise the practice of inclusive education especially at the basic level, “she said.
She further advocated conscious effort to get an appreciable number of young men and women to read courses on Special Education to help with the overall care and management of such children.
From Dzifa Tetteh Tay, Tema.
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Speaker of Parliament inaugurates open Parliament Steering Committee, launches action plan
The Speaker of Parliament, Alban Sumana Kingsford Bagbin, has launched the Open Parliament Steering Committee and the Open Parliament Action Plan.
The ceremony was under the theme “Achieving Gender Equality: Action by Action.”
The Speaker highlighted the critical role Parliament plays in translating the will of the people into inclusive legislation, responsive policies, and accountable governance.
“The International Day of Parliamentarianism is worth celebrating, as it offers an opportunity not only to recognise and promote achievements in strengthening democratic governance, but also to pause and reflect on the remaining gaps in institutionalising parliamentary democracy,” he said.
He noted that the event was scheduled to coincide with the International Day of Parliamentarianism to reinforce the importance of open and inclusive governance.
The Majority Leader, Mahama Ayariga, stated that the International Day of Parliamentarianism is intended to recognise the vital role Parliaments play globally as pillars of democratic governance.
He noted that this marks the first time Ghana is formally observing the day.
“The gravity of our observance is further accentuated as we convene to witness the launch of the Open Parliament Action Plan by the Open Government Partnership Caucus,” he said.
Delivering a statement on behalf of the Minority Leader, Alexander Kwamena Afenyo-Markin, the Deputy Minority Leader, Patricia Appiagyei, described the Open Parliament Action Plan as a transformative initiative aimed at strengthening the relationship between Parliament and the public.
She said the plan represents a bold commitment to making Parliament more transparent, accessible, and responsive to the needs of Ghanaians.
The Clerk to Parliament, Mr. Ebenezer Ahumah Djietror, described the launch as a key milestone in the effort to build a citizen-focused and accountable Parliament.
He added that the International Day of Parliamentarianism is a call to action to recommit to the highest standards of public service and democratic accountability.
The inauguration was attended by a wide range of stakeholders, including the Majority and Minority Members of Parliament, members of the Open Parliament Steering Committee, the Open Government Partnership (OGP) Caucus, Parliamentary Network Africa, representatives from civil society organisations, members of the diplomatic corps, traditional and religious leaders, student bodies, the Parliamentary Press Corps, and other media partners.
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NACOC declares drug menace a national emergency
The Parliamentary Committee on Defence and Interior has paid a working visit to the Narcotics Control Commission (NACOC) to engage with its leadership and assess operational challenges hampering the fight against illicit drugs.
In a detailed presentation, Dr. Basha Ligbi, Head of the Commission’s Research Bureau, highlighted critical setbacks including broken body scanners at airport terminals, inadequate office infrastructure, overcrowded detention facilities, and deteriorating vehicles.
He also called for the Commission’s headquarters to be reclassified as a security zone, citing growing security risks due to private encroachment and nearby high-rise developments.
Director General of NACOC, Brigadier General Maxwell Obiba Mantey, described the escalating drug trade as a national emergency, warning that drug barons now rival armed robbers in threat level and are gaining influence at the highest levels.
He appealed for stronger institutional support and morale-boosting interventions to preserve the integrity of NACOC officers.
Chairman of the Committee and MP for Builsa North, James Agalga, assured the Commission of the Committee’s commitment to escalate the concerns to Parliament and engage key justice sector stakeholders to fast-track reforms in support of NACOC’s mandate.
