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Dr Vivian Paintsil expresses concern over lack of gov’t support for Hemophilia care in Ghana
Dr Vivian Painstil
A senior lecturer at the Department of Child Health at the Kwame Nkrumah University of Science and Technology (KNUST), Dr Vivian Painstil, has expressed concern over the little commitment from government to provide the needed logistical support for hemophilia care in the country.
She explained that it had always been the World Hemophilia Federation that had been providing support for people living with hemophilia through their provision of drugs and diagnostic equipment.
For her, that needed to be addressed to provide good care support systems to patients with the condition.
Hemophilia is a genetic disorder that causes blood to take a long time to clot, a process needed to stop blood.
Speaking at a media roundtable on Thursday as part of the commemoration of this year’s World Hemophilia Day, slated for April 17, the engagement was targeted at creating more awareness on the condition.
It was organised by Pfizer a multinational pharmaceutical and biotechnology corporation and a partner of the World Federation of Hemophilia (WFH).
Giving statistics she said, WFH working closely in partnership with hemophilia treatment centres (HTCs) in 29 African countries revealed that more than 38,000 people worldwide were living with hemophilia B in 2021 stressing the need to create more awareness on hemophilia [bleeding disorders] and its care mechanisms.
Dr Painstil who also doubles as a Paediatrician working at Komfo Anokye Teaching Hospital (KATH) said People with hemophilia were at risk of excessive and recurrent bleeding from modest injuries, which have the potential to be life-threatening.
“The burden people living with hemophilia B face is significant, with many receiving routine infusions or injections which interfere with their ability to take part in day-to-day activities “she stated.
She, therefore called on the government to put in efforts by providing the needed logistical support for hemophilia care in the country.
She noted that, only the Teaching Hospitals, as well as some selected regional hospitals, provided care support for hemophilia patients in the country explaining that due to a lack of resources, including logistical and human resources at the district health facilities, people with the condition could not access care from such places and as such, had to travel to the Teaching or Regional hospitals to be seen.
She said currently, 309 patients had been registered by the Ghana Hemophilia Society, revealing that there were about 1500 cases yet to be diagnosed.
The Pfizer Medical Director for Sub-Saharan Africa, Kodjo Soroh, for his part said, “Pfizer’s efforts at advancing treatment for hemophilia and bridging gaps in access to care resonates with this year’s theme of World Hemophilia Day’s (WHD) Access For All: Prevention of Bleeds.”
He said Pfizer’s commitment to equity and continued investment in hemophilia was evident in its more than 30 years of experience in developing therapies for hematological disorders as it has a deep understanding of the significant challenges that people living with hemophilia continually face.
He pledged the commitment of Pfizer to continue to raise awareness on the condition, saying “We will continue to amplify and celebrate the work of the global hemophilia community as we create awareness on the need for innovation in access to hemophilia treatments.”
Professor of Hematology and Blood Transfusion of the University of Lagos, Professor Akanmu said people with severe hemophilia “often bleed spontaneously into their muscles or joints, or rarely into other critical closed spaces such as the intracranial space, where bleeding can be fatal.”
BY BENEDICTA GYIMAAH FOLLEY
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Focus on more pressing issues like Galamsey, not hate speech – Ellen Ama Daaku to Mahama
An aide to former Vice President Dr. Mahamudu Bawumia,Ellen Ama Daaku has advised President John Dramani Mahama to shift his attention from social media hate speech to more urgent national issues such as illegal mining.
Speaking in an interview, she noted that the President’s recent comments about tracking the IP addresses of people who spread hate speech were unnecessary.
According to her, President Mahama must first define what he considers to be hate speech before seeking to punish people for it.
Ms. Daaku argued that the President himself had benefitted from hate speech and social media attacks in the past when he was in opposition.
She said even during his time in government, he described his opponents and their tribesmen in unpalatable terms, which later drew complaints from former President Nana Akufo-Addo to the Catholic Bishops’ Conference.
She stressed that harsh criticism of leaders on social media should not automatically be considered hate speech, adding that former leaders, including former President Nana Akufo-Addo had all been subjected to it.
“He is only feeling what Nana Akufo-Addo went through for eight years,” she remarked.
While acknowledging the need to regulate misconduct online, Ms. Daaku insisted that going after social media activists should not be a priority.
She noted that many political activists, including herself, had been insulted and attacked online but never called for arrests.
She concluded that President Mahama should focus his energy on solving pressing problems such as galamsey and the economy instead of concentrating on critics on social media.
By: Jacob Aggrey
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Prof Alidu Seidu files nomination for Tamale Central seat
The newly elected parliamentary candidate of the National Democratic Congress (NDC) for Tamale Central, Prof Alidu Seidu, has submitted his nomination forms to the Electoral Commission.
As of 10:00 a.m. today, he was the only person who had filed to contest the seat.
Nomination of candidates will close at the end of the day.
Associate Professor and Head of the Political Science Department at the University of Ghana Legon, Prof. Alidu Seidu won the National Democratic Congress (NDC) parliamentary primaries in the Tamale Central constituency with a landslide victory.
The elections, supervised by the party’s Elections and IT Directorate in the Northern Region, saw Prof. Seidu poll 840 votes out of the total valid ballots cast.
His closest contender, Lawyer Hanan Gundadow Abdul-Rahaman, secured 536 votes.
The other aspirants could not make significant gains, with Dr. Seidu Fiter obtaining 44 votes, Aliu Abdul-Hamid 23 votes, and the rest recording fewer than 10 votes each.
In all, 1,500 ballots were cast, with 6 ballots rejected and 7 spoilt ballots recorded.
The results were signed and declared by Dr. Arnold Mashud Abukari, NDC Northern Regional Director of Elections and IT.
The National Democratic Congress (NDC) held parliamentary primaries in Tamale Central to choose a candidate for the upcoming by-election following the death of the sitting Member of Parliament, Dr. Ibrahim Murtala Mohammed. Dr. Mohammed, who also served as Minister for Environment, Science, Technology and Innovation, tragically died in a military helicopter crash in the Adansi Akrofuom District on August 6, 2025, alongside seven others.
His passing left the Tamale Central seat vacant, as required by Ghana’s 1992 Constitution.
The Electoral Commission has scheduled the by-election for September 30, 2025. While the NDC moved quickly to open nominations and vet aspirants, the New Patriotic Party (NPP) announced it would not contest the seat, citing the need to respect the somber circumstances and promote national unity.
By: Jacob Aggrey
