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Prioritise affordable treatment of sickle cell treatment —Health Expert

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Health experts have urged Ghana to prioritise affordable and accessible treatment for sickle cell disease (SCD) as advanced, but costly curative therapies remain out of reach.
SCD, an inherited blood disorder, affects about three in every 100 newborns in Ghana.
Globally, around 1,000 babies are born with the condition daily, with three-quarters in sub-Saharan Africa.
The disease causes severe complications including chronic pain, anaemia, infections, strokes and organ damage, often leading to shortened life expectancy.
In recent years, gene therapy has been developed as a potential cure.
However, its cost—running into millions of dollars per patient—makes it financially and technically inaccessible in Ghana.
According to Dr Lawrence Osei-Tutu, a Sickle Cell and Childhood Cancer Expert at the Komfo Anokye Teaching Hospital, “the country must instead focus on practical, lower-cost interventions such as hydroxyurea”, a decades-old cancer drug proven to reduce painful episodes, hospitalisation and life- threatening complications in SCD patients”.
Taken orally, the medicine improves red blood cell function and is considered safe and effective.
“Hydroxyurea therapy is as good as the cure and a low-hanging fruit to pluck, we must bring a cure to our sickle cell warriors, but do so sustainably.” he urged.
In a chat with The Spectator here, he said to create awareness on the disease, the expert noted that despite its benefits, “hydroxyurea is not widely accessible in Ghana.”
Stressing that, “many patients either cannot afford it or struggle with irregular supply through the health system.”
Moreover, he argued that scaling up access would provide immediate relief while the country builds the infrastructure, trains specialists and secures funding needed to support curative therapies in the future.
With an estimated 15,000 babies born with sickle cell disease annually in Ghana, Dr Osei Tutu cautioned that “failure to improve access to effective treatment will leave many patients vulnerable to preventable complications and early death.”
From Kingsley E. Hope, Kumasi
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ProofreadChildren exposed to arts, culture early develops strong intellectual, communication skills – Acting E/R CNC Director

Toddlers from various kindergarten schools in the Eastern Region on Tuesday thrilled patrons with impressive cultural performances at this year’s Kindergarten festival organised by the Centre for National Culture (CNC) in Koforidua.
The children from the participating schools recited poetry, staged drama performances and performed a variety of traditional dances, including Kete, Kpatse, Borborbor and Apatampa, under the theme: ‘Little Stars: Celebrating Our Culture for Future Impact.’
Participating schools included Love Community Kindergarten, Koforidua Grammar School, Solomon School, Charles Wesley Academy, Unique Kiddie Care, Alpha Hills School, Assemblies of God Kindergarten, Brentford Academy, Liberty Academy, Berlin Academy, Bolders Journey School and New Dawn School.
The Acting Eastern Regional Director of the CNC, Dr Salamatu Alhassan, said research had shown that children exposed to arts and culture from an early age developed strong intellectual and communication skills.
“These toddlers participating in this festival have the potential to be ahead of their peers because training in arts and culture broadens their minds and enhances their intelligence.
Dr Alhassan said, considering the numerous benefits of arts and cultural education, it was important to nurture children from an early age to become future ambassadors of Ghana’s rich cultural heritage and contributors to the country’s creative economy.
She said the CNC was mandated to promote Ghana’s arts and culture and assured that such festivals would continue to be organised regularly to provide more children with opportunities to develop their talents.
Dr Alhassan encouraged parents and teachers to support children to participate in cultural festivals and related activities to help build their confidence, creativity and appreciation of Ghanaian culture.
The Eastern Regional Director of the Department of Children, Mr Emmanuel Nana Osei, said exposing young children to Ghanaian culture through such festivals was essential because it helped them develop a strong sense of identity.
He said as future leaders, children needed to understand their cultural roots to develop a sense of belonging and appreciate the need to contribute meaningfully to national development.
Mr Osei also urged parents to encourage their children to participate in poetry, drama and traditional dance activities to nurture their talents and preserve Ghana’s cultural heritage.
From Ama Tekyiwaa Ampadu Agyeman, Koforidua
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Adolescence is like an egg, handle it carefully …Adolescents urged

Adolescents have been urged to treat their teenage years with caution, with adolescence being compared to ‘an egg’ that can crack instantly from a single mistake.
This came up during an engagement with adolescent boys and girls at Ave-Dakpa in the Akatsi North District under the project, ‘The Clinic Is Yours,’ an open day clinic, to invite adolescents and the youth to visit health facilities for free access to youth-friendly services.
It was organised by the United Nations Population Fund (UNFPA), the UN’s sexual and reproductive health agency in collaboration with the Planned Parenthood Association of Ghana (PPAG), which is also a leading volunteer-supported non-governmental organisation, focused on providing comprehensive Sexual and Reproductive Health and Rights (SRHR) information and services to young people in Ghana.
Madam Rosemary Addeh, the Midwife and In-charge of the Ave-Dakpa Health Centre, who facilitated the engagement, said adolescence was a period of rapid physical and brain development between childhood and adulthood, typically spanning the ages between 10 and 19, involving the search for social independence.
“Adolescence really is as fragile as an egg, and a single mistake can alter a young person’s future instantly.”
She explained that curiosity, peer pressure, and the desire to fit in made teenagers vulnerable and that the “egg once broken” by a crisis such as an unplanned pregnancy, the effects on a young person’s education, health and future were difficult to reverse.
The session highlighted the physical, mental, and social toll of teenage pregnancy, with other health risks cited including anaemia, malnutrition, early labour, and low birth-weight babies, because of immature physical development.
She said mentally, young mothers faced stress, depression and stigma, while socially many dropped out of school and faced long-term financial hardship.
To “handle the egg safely,” adolescents were advised to practice open communication with parents, seek comprehensive reproductive health education, set clear life goals, and build self- esteem to resist risky situations.
“When you access phone, use it for something profitable not pornographic materials. Also, access youth-friendly services. Get close to health workers on any information on SRHR, do not ask around to be deceived or misinformed as that can land you in trouble,” Madam Addeh advised.
Mr Delali Alex Dwomoh, the Physician Assistant and In-charge of Ave-Dakpa Health Centre, also addressed the group, assuring adolescents that health workers would not judge them.
“Take whatever you were told seriously. We will not be judgmental but will help you as young people to reach your full potential,” he assured them.
Mr Emmanuel Christopher Makam, the PPAG focal person for UNFPA Adolescent Girls Empowerment Project and Gender-based Violence Scale Up project for Volta Region, said the engagement formed part of ongoing efforts to equip adolescents with knowledge and support systems to navigate adolescence safely.–GNA








