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Prioritise affordable treatment of sickle cell treatment —Health Expert

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Dr Lawrence Osei-Tutu
Dr Lawrence Osei-Tutu

 Health experts have urged Ghana to prior­itise affordable and accessible treatment for sickle cell disease (SCD) as advanced, but costly cura­tive therapies remain out of reach.

SCD, an inherited blood disorder, affects about three in every 100 newborns in Ghana.

Globally, around 1,000 ba­bies are born with the condi­tion daily, with three-quar­ters in sub-Saharan Africa.

The disease causes se­vere complications includ­ing chronic pain, anaemia, infections, strokes and organ damage, often leading to shortened life expectancy.

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In recent years, gene ther­apy has been developed as a potential cure.

However, its cost—running into millions of dollars per patient—makes it financially and technically inaccessible in Ghana.

According to Dr Lawrence Osei-Tutu, a Sickle Cell and Childhood Cancer Expert at the Komfo Anokye Teaching Hospital, “the country must instead focus on practical, lower-cost interventions such as hydroxyurea”, a decades-old cancer drug proven to reduce painful episodes, hospitalisation and life- threatening complica­tions in SCD patients”.

Taken orally, the medi­cine improves red blood cell function and is considered safe and effective.

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“Hydroxyurea therapy is as good as the cure and a low-hanging fruit to pluck, we must bring a cure to our sickle cell warriors, but do so sustainably.” he urged.

In a chat with The Specta­tor here, he said to create awareness on the disease, the expert noted that de­spite its benefits, “hydroxy­urea is not widely accessible in Ghana.”

Stressing that, “many patients either cannot afford it or struggle with irregular supply through the health system.”

Moreover, he argued that scaling up access would pro­vide immediate relief while the country builds the infra­structure, trains specialists and secures funding needed to support curative therapies in the future.

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With an estimated 15,000 babies born with sickle cell disease annually in Ghana, Dr Osei Tutu cautioned that “failure to improve access to effective treatment will leave many patients vulnera­ble to preventable complica­tions and early death.”

 From Kingsley E. Hope, Kumasi


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Parliament appeals for release of GH¢5.6 million to Petroleum Commission

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The Parliamentary Select Committee on Energy has appealed to the Ministry of Finance to release GH¢5.6 million to the Petroleum Commission to enable it to establish and operate a world-class data centre.

According to the Committee, access to the funds will strengthen the Commission’s capacity to manage critical upstream petroleum data and improve its operations.

Speaking during the appeal, Chairman of the Committee, Emmanuel Kwasi Bedzrah, said the move was crucial to efforts to revitalise Ghana’s upstream petroleum industry and increase oil production.

He noted that although investment and hydrocarbon production had declined in recent years, Parliament’s approval of an extension of the petroleum agreement to 2030 had attracted additional funding and contributed to an increase in production from about 80,000 to 120,000 barrels per day.

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Meanwhile, concerns have been raised over repeated budget allocations for oil exploration in the Voltaian Basin.

Mr. Bedzrah stressed that funds approved for exploration must produce tangible results, adding that the Committee would require clear evidence of progress before supporting future budget allocations for the programme.

The appeal was made during a working visit to the Petroleum Commission as part of the Committee’s oversight activities to assess its operations and management procedures.

During the engagement, the Chief Executive Officer of the Petroleum Commission, Emeafa Hardcastle, took the Committee through the Commission’s working procedures and mandate, which includes regulating, managing and coordinating upstream petroleum activities.

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She disclosed that since assuming office in 2025, government had pursued measures to reverse the decline in crude oil production, sustain output and reposition Ghana as an attractive destination for investment in Africa’s increasingly competitive petroleum sector.

In addition, she said government had secured fresh commitments of about US$35 billion to help revitalise the sector.

As part of the oversight exercise, the Committee is expected to conclude its monitoring visit with engagements at the National Petroleum Authority (NPA) and the Ghana Oil Company Limited (GOIL).

By Edem Mensah-Tsotorme

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“No civilisation deserves to be annihilated” – Mahama calls for dialogue on global conflicts at UNGA 81

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President John Dramani Mahama has called for solidarity and dialogue in resolving global conflicts, insisting that no civilisation deserves to be wiped out.

“No human civilisation deserves to be annihilated, certainly not a member state of the United Nations,” President Mahama stated in his address at the 81st United Nations General Assembly in New York.

He called for solidarity with nations facing terrorism, especially the Alliance of Sahel States (AES), and for a uniform approach to conflicts in Europe, the Middle East and Africa.

On the Middle East, the President called for a return to negotiations, saying “The current Middle East crisis is having a deleterious effect on the world economy.”

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“I believe that dialogue can resolve even the most intractable of problems,” he added.

By Edem Mensah-Tsotorme

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